No events scheduled for January 19, 2023. He describes her as "someone who is all that is good in the world." A neighbor of Patchett's described Sooki as a saint. I might have made the choice to let it go unmentioned had there been something else to talk about, maybe his mother or my mother or the spigot that had frozen in the garage. She painted her granddaughter striding through a field of her own imagination, she painted herself wearing a mask, she painted me walking down our street with such vividness that I realized I had never seen the street before,Patchett wrote. To introduce Karl into this narrative as a general internist (he calls himself a pediatrician for adults) would be reductive. It's essays. My mother was a pilot, Sooki said, and there she was, suddenly at ease. She made props for TV shows. I sent her books on color theory. Look at this.. How it happened is told in the title story ofThese Precious Days, Patchetts second collection of essays. 2023 USA TODAY, a division of Gannett Satellite Information Network, LLC. She even dedicated the front cover of her new book to Raphaels lovely painting of her dog. Whether you loved it or hated it may depend on your feelings about celebrity culture since the benevolent presence of Hanks and his wife, Rita Wilson, hovers in the background. And this led to you meeting Sooki. Have a wonderful day today. Sookis impending departure touched a memory I made a point of not revisiting: My sister and I flew from Tennessee to Los Angeles for one week every summer to see our father, and on the morning of the day we were going back to Tennessee I would start to cry. Everyone could bring his or her own sandwich and stay safely apart. And it's such a funny thing. I dont take notes. I was grateful for both of those things. Twenty-two sessions down and six to go. There was an abstract image, and it was clearly younot in a physical way, but as a soul. Its just. She stopped. It was late and Id just finished the novel Id been reading. I was going only for the night. I told them that when I was a child, my sister and I would come to the Ryman on Friday and Saturday nights with the man who was then the house doctor at the Opry. In bed that night, Karl told me about how happy they all were, how kind. I leaned over to look at her phone. Now she would go home to her husband, her children, her grandchildren, her friends. Hows the painting coming? I would ask. And that was so sweet, but what it meant was I couldn't go home for Thanksgiving. Or its supposed to slow it down. She hadnt lost her hair on FOLFIRINOX, though shed lost her sense of taste and smell, the feeling in her feet and hands, and twenty pounds. And I roll them all up. He walked me through the publishing process: being thrilled by acceptance, ignoring reviews and then having the dream of bestsellerdom dashed What mattered was that you knew how to love the job.. Ive had a happy life because of her.. But she could. To the best of my knowledge, she never quit. She has to have children., It could happen. It meant she didnt have to sit out chemo for a week. I didnt know you had a husband!! Sooki Raphael 12 Titles Is this you? Sooki Raphael leaves her canvas as colorful as she has led her life. Sooki of the magnificent coat. A weekly email taking aim at the relentless absurdity of the 24-hour news cycle. It must have fallen off my shoulder when I got in the car. Sooki was a tiny thing, with thick brown hair and olive skin. She wasnt just her illness. Arent we talking about doing this together?, Oh, I said. All rights reserved. I couldnt. She liked the team in Nashville. I have limited time as I work til mid May, then leave the US in June until I come back to start another movie in September. Please sign in to save videos. A week later, Tom Hanks started recording The Dutch House at a studio in Los Angeles. And what about the women who cleaned that house, who fixed those children their dinner? Had I known she had a husband, might I have assumed that she was taken care of and so not followed the story as closely? I wasnt suffering the crashing waves of anxiety that battered down so many people I knewthough two hours of daily yoga and meditation also contributed to keeping panic at bay. I was taking in every precious day. It was a straight-line wind, a freak occurrence that came out of nowhere. We were standing in the kitchen in the late afternoon, the time before dinner and between two yoga sessions. This article was originally published inThe SpectatorsUK magazine. My husband, Karl, and I sat in a dressing room with them for an hour and a half between sets. I hoped he would ask me to join them. Shed worked on a documentary about George Romero called Document of the Dead (she was a zombie in Dawn of the Dead). She was the New York City Bat Lady at 21. She went inside to see for herself. The second time they came because Rita was singing at the Grand Ole Opry. They would flow on in papery layers, in a creation act. Only on weekdays and not on the Fourth of July, because apparently cancer knows to take weekends off and observe federal holidays. After dinner that night, Sooki and I sat on the couch and tried to watch a movie, but her phone on its leash began to ding and ding and ding, insisting on her attention. I am hopeful and feeling radical. I had to listen to what she was telling me. Sooki Raphael is an artist. I'll see if I can get her into a trial here in Nashville. She told me that she had to put Sooki on a leash when she was little because she ran so much. Im not sure I can describe it without it sounding like an extension of the mushrooms, but it had that kind of depth and clarity of message for me. She shook her head. PATCHETT: It really is. Surely there was a piece of this story she was leaving out because the next thing I knew shed sailed off with them. Email tilts toward the overly familiar. He shook his head. The days went on and I could feel Sooki slipping, hounded by her own indecision. Its HARD. Id written a childrens book and was about to go on tour. What became of them? I wanted to know what her worst fear about staying here was, and after a pause she told me she was a vegetarian. By the time I was done signing books that night, the event I had scheduled in New York the next day had been canceled. People were out with their dogs. The car I was locked into was now hurtling down through a million winking flagella, every one a different color. By the time the playlist had reached Tristan and Isolde, my skull was a horses skull, dry and white and empty. I live fourteen minutes from the airport and five minutes from the hospital. KELLY: Speaking of friendships that we make in college, early in life when we - it feels like we have all this time to just live in the present, tell me about another essay - "The First Thanksgiving." She looked like Los Angeles in winter. She had transferred her life into brushwork, impossible colors overlapping, the composition precariously and perfectly balanced. It has been an exercise in creative storytelling to try to think up more and more reasons why the number might rise while the scans (CTs! And now there was a pandemic, recurrent pancreatic cancer, and so this goodbye reminded me of my father coming onto the plane with us, sitting with me and my sister, the three of us sobbing inconsolably until finally the flight attendant would tell him he had to go. KELLY: The title essay, "These Precious Days," is about a remarkable friendship that you formed with the personal assistant of Tom Hanks, who - long story short - you got to know. All day long Sooki emailed me pictures of her family with the subject line Where is our other sister? The paintings were bold, confident, at ease. She hadnt seen it happen. No outfit ever showed up twice. Sooki, bareheaded, her silver earrings dangling down her neck. Everything looks so logical going backwardYes, of course, thats what we didbut going forward its something else entirely. He knew. Not a guru. She had her surgery at Duke and survived. In the press release for the exhibition, ROSEGALLERY said her works used her colorful palette as an expression of a renewal of spirit and life as she healed alongside the scorched landscape of the Malibu and Topanga hills.. The cherry blossoms hung on forever. There were pictures of her at twenty-two, beautiful and dark-eyed, standing on somebodys desk in little canvas tennis shoes, her gloved hands holding a bat and a net. I said good luck because there was nothing else to say. Sooki arrived in Nashville on Sunday, February 23, just after Kate left. All the people who love me and how hard this has been for them, the cancer. Did you have a hard time?. I was also greatly occupied by the bookstore. Im dying, my friend had said to me. Nothing. We waited. They both had the coronavirus. Many nights after dinner, I would ask Karl where Sooki was and then we would start looking around for her. Once I start writing things down, I feel like Im nailing the story in place. Except it was Sooki, and I liked her very much.. She walked to the hospital for chemo and then walked home. The title essay focuses on Patchett's friendship with Sooki Raphael, Tom Hanks' personal assistant, who spent the early months of quarantine in Patchett's Nashville home while receiving. Raphael turned to art during a tumultuous time in her life and created works that will continue to be enjoyed long after her passing. It would be a nightmare.. Later, she asked him if hed be willing to record the audiobook of her latest novel, The Dutch House. When he agreed, she began a protracted email exchange with Raphael to work out the details. The treatments left her tired, but she was managing. She agreed to stay for a few nights, but after that she said she would rent a car and find a hotel. I woke up the dog and the three of us left in the darkness. With our hands on our shoulders we turned left and right, left and right, endlessly. I was trying to read her lips. The phone sat beside her on the table quietlythe prodigal returnedwhile we asked the kind of questions people ask on first dates: Do you have siblings? It was my intention to vomit, but the idea of getting past Sooki was overwhelming. I was interested in her children. She and Tom would walk in the desert in the early mornings and she would feed him lines from a script while he memorized his part, cobras skating through the dust just in front of them. Its essential to the life of a novelto come upon the turn you never saw coming. I find a stream and follow it, the stream dries up, and Im left to look for moss on the sides of trees. There are days of the distant past that remain so vivid to me that I could walk back into them and pick up the conversation mid-sentence, while there are other days (weeks, months, people, places) I couldnt recall to save my life. That at home she felt responsible for overseeing every aspect of her treatment, researching cures, double-checking medical ordersshe had caught a few harrowing errors along the way, near missesbut here she knew that Dr.Bendell and Karl always had their eyes on her. I didnt say, This thing you live with every minute, this heaving horses skull, I held it for you today so that you could talk it out with the people who love you. There were so many other people who would have done anything to be with herher mother and husband, her daughter and son and grandchildren, her sisters and all of her friends. Could I say that I would like to come see her? We have come to the point in this story when time changes. But by the time Karl and Sooki left for the airport she was happy. "Primarily and in her soul she was an artist." Miraculously, after a spate of vigorous exercise there would be enough white cells to slip her in just under the wire. I can tell you where it all started because I remember the moment exactly. Sooki was coming as a patient, and more than a little of the work was going to fall to him. I would bring her stacks of art books from the closed bookstore and she all but ate them. I felt their love for me. She loved Dr.Bendell. This wasnt out of the ordinary for me, as Im sure it wasnt for her. I try to keep all the parts of my life separate.. Called These Precious Days(Harper, 320 pp., out of four, out Tuesday) after a line from the pop standard September Song, memorably recorded by another Nashville legend, Willie Nelson, the essay lends its melancholy title to a new collection of essays by one of Americas premier writers. She joined the ships crew. I can motivate myself without a deadline or a contract. I had thought I was writing a novel about a woman who had left her family to go serve the poor in India. Again it would appear this story had reached its conclusion. The waiter came out and told us to get back inside. She worked for Tom Hanks. I met an old friend from school who lived up in Harlem and she drove me out. I pulled up my eye mask. First the tornadoes, Sooki said, taking picture after picture, the giant root systems pulling up slabs of earth taller than Karl, the bright spring grass meeting the sidewalk at right angles. I was leaving for Virginia. I think about you often and hope for the best. 68 books15.8k followers Patchett was born in Los Angeles, California. We had never spoken on the phone. Everyone was wide awake, waiting up to see if the world was going to end. Sookis a pilot! Karl said. Shed been a location scout, made wedding cakes, started a childrens clothing company, taught ceramics. I want to envision it as a healing room, but it reminds me of a meat locker: freezing coldIm guessing the temperature favors the delicate machinerywith a rack of blue torsos lined up on hooks. They arent going to give you her wallet, I said. I walked from my hotel to the theater and showed my ID to a guard who then led me to the crowded greenroom. I would be in and out, other people would spend the night, which would be fine, plenty of room for everyone. ", (SOUNDBITE OF STATIK SELEKTAH SONG, "TIME"). After her first round of cancer, while she recovered from the Whipple and endured the FOLFIRINOX, she started to paint like someone who had never stopped. Thats like the building blocks of my, of my life, Farley told SurvivorNet. Some people stay for months. I didnt say, Your death. I kept up with a great number of people, and I didnt know to what extent Id told Sookis story to Karl before, and if I had told him, I didnt know whether hed been listening, but now I had his full attention. She thought it would be fun for a while. What about the children who were left behind in that house she hated? Could we talk about it sometime? They have it, she said. Twenty-five people had been killed in the last round of tornadoes in Nashville, two months before. Later in the summer there was radiation, just to be safe. He would tell me how lucky we were, the three of us together. She shouldnt stay for us or leave for us. Im a good packer. She told me she had packed for good cheer, having had the reasonable expectation that times would be hard and cheer a necessity. Sooki had been working for the bat squad in New York when a bicentennial parade passed in front of the Bureau of Animal Affairs. Just think, I would say to her on Wednesdays. I went to Virginia to see my friend Rene Fleming in concert. A couple of authors who were scheduled to have events at the bookstore had pulled out. She would pour color into my inbox for a while and then be gone again. Hey, how are you? There was no money or freedom or wherewithal to buy another ticket and see him sooner. But now she's memorialized in author Ann Patchett's latest book, These Precious Days: Essays, which will be released Nov. 23. We knew it. Her best friends lost everything in that fire. There had been a meeting of some sort. This whole time Ive gotten it wrong. That night there was still no power, and so we lit candles. And he said, oh, well, ask her if she wants to send me her files. People are not composed entirely of their facts, after all. Twenty-five people died in Nashville the night of those tornadoes. From her patio, she could watch the planes take off and land. Pancreatic cancer is an aggressive disease that is difficult to detect because symptoms - including jaundice and weight loss - typically present at a later stage in the cancer's development. Karl and the dog went out on the front porch to read the newspaper. My doctor paired up some words I never thought I would hear together: pancreatic cancer and youre in remission! It seems like an early declaration, but Ill take it! She must miss all those people she so rarely spoke of. Or maybe it was the company. Yoga was Sookis necessary social hour, and what I got in return was time with Sooki. I studied what did not come naturally, she told me. What was the line of childrens clothing called? 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Sooki and I kept up a sporadic email exchange once the audiobook was done. Where were you born? In her last two and a half years, Sooki started painting. Gingerly we picked our way forward. The ones who stayed turned out to be the ones I was interested in. Karl, being Karl, took the officer around the corner to explain the situation. When Ann Patchett decides to try medicinal hallucinogens to accompany her ailing friend on a spiritual journey (also to alleviate the pain caused by chemotherapy), he gives them space. . The next day she brought up the vacuum cleaner to vacuum off her yoga mat. As the warning sirens kicked in at four in the morning, only Sooki was awake. Where I was going was death. Because then, it won't just be me; it will be the entire world of people in my head. I told her, of course, that she would stay with us. Facedown on a bath mat, I forced myself to take a breath. No, Im fine. Sparky had crawled onto my chest and gone to sleep. Really? Whether she was trying to hold on to her own sense of privacy or what she perceived to be our privacy, I didnt know. Which she did. Raphael passed peacefully on April 25. She had said almost nothing and yet my eye kept going to her, the way ones eye goes to the flash of iridescence on a hummingbirds throat. My friend Sister Nena had just called. But her time as Hanks assistant brought her to a woman who would later become an invaluable friend during her cancer treatment and artistic journey. When Sooki and Karl got home that night, they were elated. Tom and Rita were in Australia, where he was about to start shooting a movie about Elvis Presley. I told her to take her time settling in. How Does the Story End? Death, I said. Now, their friendship lives on in Patchetts latest book which will be released on Tuesday Nov. 23, 2021, entitled These Precious Days: Essays a collection of essays that shares another intimate look at the inner workings of her mind. They were waving. The fact that the two of you want me here, that you love me, that you believe in meit makes me believe in myself. A neighbor of the Patchett's described Sooki as a saint. College was meant to be rigorous, and so she signed up for animal behavior instead. Maybe Niki was right about my life being different, but maybe thats because I tend to think of things in terms of story: I pick up a book and read it late into the night, and because I like the book, I wind up on a flight to D.C. The essay, "These Precious Days," chronicles Patchett's meeting with actor Tom Hanks, who was promoting his first book of short stories, Uncommon Type, and had asked Patchett for an endorsement. I crawled around her as carefully as I could and collapsed in the hallway. Who knew there was so much color? lives. Heres to more time to explore color and enjoy all the peoplelike youwho make life colorful. I guess you never know if youre the person whos going to look good bald until youre bald.. Sookis two sisters, one in Connecticut and one in Massachusetts, could meet them there, a family reunion at the airport. You always feel this way on Friday., Thats what Im here for, I said. It was a shaggy dog of a story by a woman passionate about dogs, touching on a variety of subjects, including her friendship with Tom Hanks assistant Sooki Raphael; Raphaels treatment for cancer; the early days of the coronavirus pandemic; the art and craft of writing; and I kid you not psychedelic mushrooms. She has opinions about my life. Curiosity is the rock upon which fiction is built.". Whenever I came to an intersection I would look to the right, the left, then up and down.. Karl was home from work when we got to the house, and he and I showed Sooki around. Maybe its the trial, she said, but I think it could just as easily be the food and the yoga.. He has me repeat my name, birth date and area of radiation each time before I enter the room. A transformer must have blown up somewhere close by. A hundred thousand people in this country had already died of the coronavirus. He uses the library table to spread out his papers. He said they were running more trials for pancreatic cancer than Sloan Kettering. The paintings came from a landscape of dreams, pattern on pattern, impossible colors leaning into one another. Get Access to Print and Digital for When she came upstairs ready to go she was wearing the black-velvet coat with the peonies on it. All three of us had lost our fathers, all three of us were close with our mothers. Sooki had gone to work for the New York City Department of Healths Bureau of Animal Affairs right out of college. I dont drink. Writers still came and spent the night; bookstore events were still packed. If I can borrow your car, Ill drive back to the airport., I shook my head. We talked and then we didnt. Out on the tarmac, I could see her again exactly as she was, resplendent in her velvet coat, her black beret. I told him about Sooki that night, but it was equally possible that I wouldnt have. I asked her. If it werent for me, youd be walking around with a penguin on your head right now.. Its too weird., There is no weirdness left between us, I said. I emailed him at work. They clearly didnt understand she intended to walk, though knowing Sooki, she probably could have carried it. Im sure these words cant adequately convey what was such a radiant message, but it stayed with me so strongly as I woke up during the night, and thats the best I can describe it. In her tribute to Raphael, Wilson pointed to her friend as proof that it is never too late to explore your creative passions. We are. I went by myself. And then pancreatic cancer. There she was in the doorway, outlined in neon tubing. She seems very nice, Karl said once we were in the kitchen. It can be a character, a place, a moral quandary. I miss our emails. I would save what I could save, and, along with my business partner, Karen Hayes, and a small, ferocious staff (including my sister Heather) who never backed down, I was determined to save the bookstore. And there I was, going nowhere. Im afraid if I leave Ill never see you again, she said in a voice I could barely hear. I cant just stay here forever.. Shes Catholic. A Celebration of Life will take place in Topanga, CA on August 21, 2021. He claims our lives are better for all the people I bring into the house. We did a different hour-long class every morning, identifying our favorites, ordering more DVDs. My cancer markerCA 19-9is nonspecific to pancreatic cancer (it can indicate other inflammation in the body), but its an indicator and is supposed to be at 35 U/L or less. I didnt know what I would have done in her place, but I imagined that upon getting the news of recurrent pancreatic cancer I would go see my lawyer and settle up my tab with the house. I have to know where Im going, otherwise I spend my days walking in circles. I wanted to go to bed and read. We hope you enjoy reading another article this month! People die of this.. Of course we are.. She didnt know. They arent hard to come by around here; my office is made up of piles of books, mostly advance-reader copies that have been sent to me in hopes Ill write a quote for the jacket. Use this bar to access information about the steps in your cancer journey. Death was there during those long, sunny days. I wouldnt be on the same floor of the house.. feb. 15, 2020: I will try to keep this quick as I know you have many fish to fry. The day I picked up Sooki from the airport in February she told me she would need to buy dry ice for Wednesdays. A few more pages would send me off to sleep, so I went in search of a short story. Sister Nena stopped for a minute to lock Sooki in her heart. Later that day we sat side by side on our yoga mats, Sookis head wrapped artfully in a scarf. Ken would come later. Sparky Walks the Neighborhood with Ann, Nashville 2020. He would bring a copilot to split up the hours. document.getElementById( "ak_js_1" ).setAttribute( "value", ( new Date() ).getTime() ); Five-time GRAMMY Awardwinners and living legends, the Blind Boys of Alabama both defined and innovated traditional jubilee gospel, turning their live shows into roof-raising musical Multi award-winning Canadian singer-songwriter and pianist Laila Biali masterfully mixes jazz and pop, bringing virtuosity and unpredictability to songs that are concise and catchy (Washington Smothers Theatre, Pepperdine University 24255 Pacific Coast Highway, Malibu, CA. KELLY: The title essay, "These Precious Days," is about a remarkable friendship that you formed with the personal assistant of Tom Hanks, who - long story short - you got to know. Sooki was desperate to be helpful. Germline mutations in ATM, BRCA1, BRCA2, CKDN2A, PALB2, PRSS1, STK11 and TP53 are associated with increased risk of pancreatic cancer. The plan was that she would go home to Los Angeles during her weeks off, and once UCLA started the trial, she could go home permanently. . I was an introvert again. The caps had to be switched out every twenty-five minutes during treatment to ensure that her head stayed more or less frozen. But remembering all the wonderful ways your loved one enriched your life and moving on from there can be such a powerful way to move forward. Three time cancer survivor, MariannaCuozzo, talks to SurvivorNet about how art helps her express herself. Everything was tremendously present tense for Sooki. One of them was shirtless and had a colorful parrot on his shoulder. She took off her cap to show me the damage. Karl is the king of the hospital. Shed fallen down some stairs outside of church the night before and twisted her foot and now that foot was swollen and sore. Im in Albuquerque shooting a movie. Well, over the next few minutes, we're going to revisit the moment I did admit that there is one author whose books I am guaranteed to gobble up, who I will read every time - Ann Patchett. She was teaching at Bennington, in Vermont, and this was the first day of classes. Save my name, email, and website in this browser for the next time I comment. NPR transcripts are created on a rush deadline by an NPR contractor. Even in this first picture, a self portrait of her while undergoing chemo during Covid she still painted. Susan Joan Sooki Raphael of Topanga, CA passed peacefully on April 25th surrounded by friends, family, color, light, joy, and love. You will love her. And it's such a funny thing. They take magic mushrooms together (a good experience for Sooki, dreadful for Ann). I will keep you more closely posted as I move ahead (in the right color shoes). If it hadnt been for the cancer, I never would have come here. How had I not asked her all these things before? Even if it wasnt a perfect plan, it was better than doing nothing. How had she known something was wrong? My friend told us we should wear eye masks and cover ourselves with blankets. I dont want you to feel like you have to stay downstairs, I said. . I had cut a small bouquet of Lenten roses and put them on the night table. Im doing the best I can to feel beautiful in this new body.. Not everyone is like this. Sooki told me they were skinks. I now knew that shed had a Whipple at Duke and twelve rounds of FOLFIRINOX followed by twenty-eight days of radiation over five and a half weeks at UCLA. To know where Im going, otherwise I spend my days walking in circles?, Oh well. 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